Despite the significant emotional and physical impact that Chronic Spontaneous Urticaria (CSU) has on people’s quality of life, the condition had never been discussed in Parliament before and had received almost no political or policy prioritisation.
Working with Allergy UK, a photo opportunity was organised in Parliament which was hosted by Sir Paul Beresford MP, Chair of the All-Party Parliamentary Group on Skin. Parliamentarians were provided with a photo of them signing a CSU pledge and a constituency specific press release highlighting their support for the campaign. This activity was supported by a targeted social media campaign to improve awareness of the condition amongst MPs.
A follow-up Parliamentary roundtable was organised to discuss CSU and the issues in the Wheals of Despair report, developed with Allergy UK. Sir Paul Beresford MP hosted the discussion, which heard from senior clinicians, patient groups, patients and a representative from NHS England.
We won a Communiqué Award for this project. Commenting on the Wheals of Despair campaign, the Communiqué judges said: “This was a fantastic and integrated campaign with a solid execution that really has delivered for patients by exposing their misery. Wheals of Despair really highlights the unmet need of this little known condition and has made a real difference for sufferers.”